At the moment Emily is swinging in her posh princess swing and Jason is making faces at her. They are both smiling, and every once in a while Emily makes a sound that we are most certain is a laugh.
Have you seen Emily's posh princess swing? Please hold while we attempt to get a picture of it.
In case you were wondering, you were on hold for 20 million seconds...it took Jason that long to get a picture he liked.
I'm emotional. That's nothing new...not really. But in the last few weeks I've been able to talk about my little miss without crying.
Up until yesterday.
For one brief moment life is as it should be. We are together as a family. Emily is sleeping in her own bed, in the bedroom her daddy and I so lovingly prepared for her. We don't have to leave our baby girl at night, and I can go into her room as often as I would like to check on her.
But knowing that it's temporary...that in three weeks time I have to take her back to the hospital, where she will have her second open heart surgery...well, it makes me tear up any time someone asks me 'how's Emily?'
After Emily was born and we were told about her chromosome deletion, I spent a lot of time reading about Emily's syndrome online.
One night while I was still recovering in the hospital I clicked on a link that I thought would give me a detailed description of DiGeorge Syndrome; instead what I found was an on-line support group for women who had chosen to terminate their pregnancies upon learning that their unborn child had the same chromosomal deletion.
I didn't read very much...I couldn't...but what I did read is burned into my memory.
As I stood at the entrance of the hospital Monday afternoon, waiting with Emily while Jason brought the car, I again thought of that website.
And while I watched my beautiful Emily sleeping peacefully, I cried tears for what those mothers missed out on.
Tomorrow will find us sitting around a table filled with my mom's best china, sharing with each other the things we are most grateful for.
This Thanksgiving I can sum up all that I'm grateful for in one word: love.
My little Elimy is love, in its truest form, and I could never have asked for more.
Happy Thanksgiving friends. Thank you for being a part of our lives.