Sunday, June 3, 2012

This Is The Song That Never Ends

We need to have a discussion.
About vomit.
I'll bet you're glad you chose to read today's post.

I need one of you to be inspired with an answer that will cure my not so much a baby anymore baby girl.

Here's what we know:

-Emily WILL throw up every day at least once, sometimes more than once.
-95% of the time it's her first feed after she wakes up in the morning, sometime between 9:00 and 10:00.
-99% of the time she will throw up half of that feed...sometimes more than half and very rarely less than half.
-If we delay her feed, which we do on some Sundays so that Jason and I can go to at least part of church together, she often is fine with her first feed, but throws up the next one.
-If she is going to throw up at night it will be during the same hours: between 9:00 and 10:00 pm, and this takes place once or twice a week, and it's usually half of her feed.
-She NEVER skips a day.

Emily is on two medicines to control reflux, and that's only because I pushed to keep her on them.  An overnight test done at the hospital a few months ago showed that Emily doesn't suffer too much from acid reflux, and Em's GI doctor doesn't think her throwing up is due to reflux.

We recently put Emily on a medication that helps to control the amount of mucous/saliva her little body makes, in hopes that her vomiting will be, at the very least, tempered.

Changing the formula doesn't help.

Changing the rate we give her her feed doesn't help.

Changing the volume we give her doesn't help.

Changing when we give her her medications doesn't help.

(And in case you need to know in order to solve the mystery, Em gets calcium, a multi-vitamin, and her reflux medicines daily.  She isn't on any medication for her heart right now.)

There is no difference if we elevate her head or not.

Cold formula vs warm formula = no difference.

From every test that has been done it would appear that Emily has a normal GI tract.

Prayer isn't even helping with this.

And although I have major skills when it comes to catching it all in a little pink hospital bowl, Emily has even better skills at knocking that bowl out of my hand.  Every. Single. Day.  I've invested in waterproof pads and cover the couch and myself. Every. Single. Day.

Do you see my frustration?

I can't find a solution...not a single one...not even half of one.




Tell me what to do.


Just look at these faces and tell me we don't deserve to have at least two vomit free days:


Thomas & Alicia Montgomery said...

uh yeah! I for one can absolutely understand your frustration! I've been praying for the past two years that Whitney would stop throwing up and to use. I have tried everything you have! Blenderized Diet (real food) didn't work for Whit. Lactose free diet didn't work. When they put in the GJ tube recently (instead of a fundo) she still throws up every single morning and at least once during the day, but it's bile/stomach juices. Is Em gaining weight? Whit is finally gaining weight and I don't have to clean up nasty formula vomit. Any ways, she does have some weird anatomy issues but motility meds didn't help her either! Sorry I didn't help much but that's all I know!

Anonymous said...

Ok - first I have to say....I have been following your blog since Emily was born. Not even sure how I stumbled on it, but I am hooked. As the mommy to 3 little girls, I have fallen in love with your dolly. I am NO expert, but my youngest (now almost 3) was born with torticollis of her neck muscles. It resulted in her having physcial therapy, helmet, etc. We also found out when she was 2 months old, that she had acid reflux. They did all sorts of test, etc. She looked(s) perfectly fine, but they thought they would start Prevacid because she threw up contantly. We have been trying to wean her from the Prevacid since she was 1 yr. old. Every. Single. Time. she throws up in the middle of the night. Has the dr's baffled, but they have agreed to leave her on it. Might be worth a try, not sure if she is currently on Prevacid. She gets it compounded (because Prevacid does not come in liquid form), so it is compoounded with sodium bicarbonate. Best of luck to you, I will be praying for you!

Madi said...

Have all the wonderful guys in our giant family get together and give her a massive blessing.

-stephanie- said...

Just because prayer isn't helping now, I will still continue to pray. God answers prayer, sometimes it's just hard to wait for His answer.

Em has the sweetest little feet. :o)
So squishable.

Noelle said...

Allison has left a new comment on your post "This Is The Song That Never Ends":

Dear Noelle- First of all, let me say how much I hate that Emily is having this issue, along with the other health issues that she has. Everytime I read one of your posts about throwing up I think you have to talk to a very good friend of mine. She and her daughter went through the exact same thing. Seriously, reading your blog is like deja vu! I don't know if she will have the answer for you, but it can't hurt to try. At the very least, you'll gain a new friend! I have told her about you and she says that she would love to help if you'd like. Let me know if you want her name and number.
Emily just gets cuter everyday! Prayers and hugs! Love, Allison

Noelle said...

Elizabeth has left a new comment on your post "This Is The Song That Never Ends":

Do you need a baby holder? I will hold her, throw-up and all, because she is SO DANG CUTE.

And you totally deserve to have two throw-up free days. Actually, you deserve more. I do not have a solution, but I will pray that someone can come up with a solution. How does that sound?

Also, have I mentioned how beautiful that girl of yours is? Totally adorable.

xo -E

Noelle said...

Lalis has left a new comment on your post "This Is The Song That Never Ends":

Okay, brainstorming activated...
It might just be the fact that she has a tube. Period. Something about her might make her nauseated...?
Her heart meds might maker her nauseated as a side effect?

If I think of anything else I'll tell you.

I'm sorry you are frustrated. In a way I can relate. There seems to be nothing I can do with my migraines, and not even prayers seems to be helping with that one. I have come to accept that that is my lot and that I just have to bear it, or as Nader puts it, suck it up. I've whined, and cried, and thrown tantrums (imagine that! A tantrum while praying, or tantrums in front of my boyfriend from how desperate I am). One day at time, I tell myself... Somehow I make it to the end of the day alive. Then the day next day comes and I may or may not be sick and have to go to work half blind. But half blind or not, I count my blessings and enjoy the little pleasures of life.

Jodi said...

I am a big fan of DoTERRA Essential oils, they may be worth a shot especially with no side effects. You could try peppermint, they make an amazing blend called Digestzen, which may help. I would be happy to give you some to see what works, but I do live far away. There is probably someone close by you that has some! Message me on facebook if you want any more information. I use oils for everything!

Dazee Dreamer said...

Is she allergic to the formula? I wouldn't have her on formula anymore if I was still having babies. My ped. always put my kids on 2percent milk at 6 months. He told me that whole milk just had more milk fat, but the same nutrients the baby needs. I don't know, I could be talking out of my butt,

Nessa said...

I can't help you with this in anyway, but I'm thinking of you guys!

Kristyn Monaghan said...

I'm pretty sure you already answered this in a previous post but have you tried feeding her baby food? Like I said, I think that you already told us all that there is a reason she hasn't started baby food but that's the only thing I can think of. But, like someone else said, just because prayer hasn't helped you in the way you want, doesn't mean prayer isn't working! I will keep praying for you and Emily and ask that God answers your prayers in the way you want them :)

Beth Zimmerman said...

No ideas here, Noelle, but prayers continue! Love you!

Anonymous said...

my very first thought is that it is a food allergy of some kind. a good friend of mine went through this with her daughter. vomiting every single day. has the go doc thought to do tests regarding food allergies. lots of babies have cow's milk allergies and a very large percentage of those babies are also allergic to soy because the protein is very similar. even the so-called "allergy friendly" formulas can contain soy and/or dairy proteins. have your sweet husband research every single formula to find one that is dairy and soy free. you have to also look for the weird names that the soy and dairy proteins have. the food allergy network may be able to help you with that.

that is the only idea i have for how to help you and your beautiful daughter.

Rachel Starchman said...

{{{Hugs}}} I have no answers like Alicia, I've offered her lots of ideas and it just doesn't help. I'm sad my sweet Whitney and darling Em puke everyday :( Its just not fair. Have you tried nausea meds like zofran Noelle? It does wonders for me....I insisted they try it with Whit in the hospital but it didn't help her. At least your a great puke catcher.

You two are beautiful and it is amazing the difference and happiness in Em's face, your doing a fabulous job Noelle =) (puke or no puke, sometimes you just can't fix it)

Mom on a Line said...

I must have missed this vomit post, so I came back for it after reading your notes to anonymous. I wish I had an answer for you, but you know I don't. We just got DQ's vomiting under control several months ago. And a lot of hers has to do with motion and harsh medications. Has the doctor suggested a J tube? I know a couple of kids who have their nutrition bypass their belly all together with a J tube. And the only other suggestion I have and I hate to suggest it is no formula at all, but TPN. I have another special needs mom friend whose daughter can only get IV nutrition. I don't believe her problem was solely related to vomit though. There was severe illness going on (nothing like those cutesy pictures you have above of sweet Emily.

I hope you find an answer. Vomit sucks.

Sue said...

I promise (maybe) that this will be my last comment, especially on a blog so old! :) I really do look forward to hopefully getting in touch with you. I've gotten my sons vommiting down to maybe 3 times a day, vs 10-15! I would be interested in knowing if you have recently made any changes. My son hasn't gained weight, really struggles. We are finally syringe feeding him (instead of pump) and doing a combo of high calorie baby food (1oz) to 3oz of formula (progestimil is what my son has been on). We are feeding him every 2 hours, 24 hours a day. UGH! I wonder when I'll die due to sleep deprivation! I am sorry for you and the frustration this brings!