...you get to read about it. Lucky you!
This morning early, before even the birds were awake, Emily woke up retching and throwing up.
I went in to make sure she was okay, and then when it was loud enough to wake Jason up, he came in too.
We changed her pajamas and her bedding, and after she had settled down I rocked her back to sleep.
Jason and I went back to bed too, and a short two hours later Em woke up again, retching and throwing up.
As Jason was changing her pajamas and I was changing her bedding he looked at me with tired eyes and said, "didn't we just do this?"
I didn't tell you this, but last week we met with a geneticist who evaluated Emily.
We've had physicians Emily's entire life who have said to us, "oh the reason she does that is because she has a chromosome deletion. We can't help you."
The geneticist, who specializes in Em's particular deletion told us, without any hesitation, that Emily doesn't throw up because of her syndrome.
"They are not related. I can guarantee it," he said.
"Take that back to your GI doctor and tell her you need a plan B."
Our GI doctor, while a really nice lady, isn't concerned with Emily's throwing up.
Not even a little bit.
And it's this routine that we've been living for the last almost 10 months that finally pushed me out of my comfort zone, and convinced me to do something more.
Today I made an appointment with another GI doctor in the same clinic, who comes highly recommended.
My sole purpose is to get a second opinion.
And as much as I like our current GI doctor, if this new doctor shows even a shred of sympathy towards what we've been dealing with, I will make the switch and not look back.
I did something else too.
I called and made an appointment with a new feeding specialist, one who also comes highly recommended.
I've hesitated for fear of hurting our current feeding therapist's feelings.
But again, we've been seeing her for 9 months and have seen Emily only getting worse when it comes to wanting to eat.
Although, she let Jason put a slice of a pickle in her mouth the other day.
The face she pulled was classic.
Making those calls rejuvenated me for a few minutes.
To be honest, I'm past the point where I hope that Emily will some day stop throwing up, but if there is even a glimmer of a shot that someone new can help her, I'll take that chance.
Remember this tablecloth?
I finally gave in and threw it away last night.
It was beyond saturated with the smell of formula, even though we scrubbed it every day.
I went to the store last night to find a new one and in the whole of Target I found one.
Halloween is not my favorite holiday; it never has been.
And I was disturbed at this being my only option.
But when I got it home I realized that it may be the perfect match for the job it will perform. (To catch throw up and save my carpet from ruin.)
I'll keep it until Thanksgiving, when perhaps I can find a new plastic tablecloth...and then Christmas...and then Valentine's...
You have to look for the silver lining people, even in vomit.
One more thing:
After spending over an hour with the geneticist he said to us, "I feel really confident about Emily's future as far as her chromosome deletion goes. She has such a good energy about her, and she's going to be okay."
Where I'm concerned, that makes it her best doctor's appointment this year!