Do you remember when Em was a tiny baby and she got a life threatening infection in her incision after her first open heart surgery?
She had been home about a month before she was taken by ambulance back to the hospital where the attending doctor told me her life could easily go either way.
I think in all that we have been through with Emily, that was the most scared I have ever been.
In the weeks leading up to that day I asked every medical professional we saw to look at Emily's incision.
You might remember that I stopped Emily's pediatrician in the hallway at church and made him look at Em's incision, because I was worried something was wrong.
Everyone told me that she was fine, that her incision looked a little bit red, but it was fine.
And as I sat in the ambulance and prayed for my baby's life, I knew that I should have fought harder to be heard.
I've wondered since then if I would ever come in contact with a doctor who would listen to me - who would sincerely take the time to listen and actually hear my concerns, and base their care off of my concerns.
Up until last week I didn't think it would ever happen that way.
The longer Emily has been off of the formula that I'm now convinced she had an allergy to, the more frustrated I've been at the GI doctor and dietitian who told me over and over again that there was no way Emily had an allergy, and that they would not even consider changing her formula until she was two years old.
I'm frustrated that they blamed all of her throwing up and misery on reflux.
I'm frustrated that they continued to up the dosage of her incredibly expensive reflux medicine, knowing that it didn't do her any good.
I'm frustrated by a lot of things ...
...and after meeting with a new GI doctor last week for a second opinion, those initial frustrations have only increased - to the point where I'm considering writing a letter to both the original GI doctor and the hospital.
Did you know that the heart and the esophagus develop at the same time during gestation?
And did you know that if you have a baby with a heart defect there is a good chance you will also have a baby with esophageal problems?
I didn't know, and I'm surprised that out of all of the doctors we've seen, it took until Em was 15 months old for someone to tell me this.
Within just minutes of me telling the new GI doctor Emily's history she had given us a diagnosis - different than anything we have ever heard.
What everyone else said was reflux that Emily would eventually grow out of is actually esophageal spams.
And although her esophagus looks normal, it is far from normal.
My poor baby girl has been having these spasms multiple times a day, and every time it happened, she felt like she was choking and probably couldn't breath, and because she would panic everything seemed worse for her.
If you add in the probable allergy to her formula that made Emily throw up every single day of her life, our girl really didn't stand a chance.
For some reason the spasms are much worse in the morning, and while switching formulas made a world of difference, it wasn't enough to take away Emily's misery.
I could give you a list a page long of the differences we see in Emily now that she is on her new formula.
The GI doctor confirmed that changing formulas was the best thing we could ever have done for Em.
But the second best thing that's ever been done for Emily?
A new medication that the GI doctor gave us - one that relaxes Emily's esophagus.
I gave Emily her first dose of the medication last Wednesday evening, and have given it to her every evening since then.
My girl wakes up happy - happier than she's ever been.
She doesn't retch.
She doesn't arch her back.
She doesn't scream in pain.
She doesn't throw up.
And it doesn't take 20 minutes to calm her down once her body relaxes.
Emily hasn't thrown up a feed once in over two weeks, and in the last six weeks she's only thrown up a handful of times.
I threw the plastic table cloth away on Saturday.
And instead of sitting in our laps, miserable during every feed, our girl just wants to play.
The change has been dramatic - and I'll be forever grateful to a GI doctor who really heard what I was saying.
You can all sigh a big sigh of relief - on the count of three we can all sigh together.
It's only been four days, but I have hope that four days will turn into 40 days and then 400 days, and by then the last 11 months of Emily's life will be something I can laugh about, and I'll be able to say to Jason, "Remember when our daughter threw up every dang day of our lives?"
The best part of all will be that the question is in the past tense.