Sunday, December 29, 2013

Early Morning Musings

I went to bed an hour earlier than Jason and Emily did tonight, hoping to get some much needed sleep.

(Jason and Emily are a package deal.  Where Jason goes Emily goes.  And if Emily doesn't go where Jason goes, she spends the time she is separated from him saying and signing daddy.  If you didn't know her you wouldn't know she was saying daddy.  But there is no doubt that daddy is officially Em's first word.)



Emily bounced on me the minute Jason brought her upstairs and for some reason I can't get back to sleep.

I feel like this first post after the holiday should be a follow-up of all things Christmas, but it's not going to be.  Instead I'll share what I've been thinking about.

I went with my mom and my sisters to see Saving Mr. Banks tonight.
Have you seen it?
I loved it.
It's the story of how Marry Poppins came to be a movie, and it focuses on the writer of Mary Poppins - who isn't Walt Disney.

At one point in the show the writer of Mary Poppins is in a limo with the man who is assigned to be her driver.
The driver is telling her about his daughter who is handicapped in some way.
Later in the show Mrs. Mary Poppins (I can't remember her name) hands the driver a list of names.

"What is this?" he asked.

"It's a list of people who were all born with something - and every one of them achieved greatness.  You tell your daughter that she can be anyone she wants to be."

I have triggers that set off my emotions, and this simple exchange was one of those triggers.
It came after a week of other triggers, and I cried through the last half of the movie, and then through most of the drive home.

The first thing Jason said to me when I walked in tonight was, "You've been crying."

Emily has two cousins close to her age - two months younger and four months younger.
I love those girls - all three of them - but when they're all together it's a trigger.
Both of Em's cousins are speaking in full sentences, and are very much aware of the world around them.
The other night at a pre-wedding celebration for my uncle (hooray my uncle got married!) I watched as my niece put her plate down on a table and then scooped guacamole onto that plate, piled it high with chips, and walked into the other room to eat.

My heart hurts at the very obvious differences between Emily and every other two year old I know.
My heart hurts that Em falls into the category of special needs.
And my heart hurts sometimes when I think about Em's future: will she ever really talk?  Will she ever catch up developmentally?  Will people look at her and judge her for what they see as different? Will her heart really hold out long enough to give her a future?

And then I feel guilty for feeling those things - because it makes me feel ungrateful.
And I'm not.
I'm not ungrateful.
It seems that on a regular basis I read of another little one who has lost their fight to the same health issues/chromosome deletion that Emily has.
I read of little ones who have it so much worse than Emily does - who have to fight so much harder.
I read of the ache of so many who just want to be a mom.

I'm a mom - and Emily is alive - and she's happy - and she's mostly healthy right now - and ...

...and in spite of it all I still hurt - and I wonder if I'm the only mom who is unable to be at complete peace with the challenges her sweet little baby came here with.

Somehow tonight, that note from Mrs. Mary Poppins to her driver felt like it was meant for me.

"You tell your daughter that she can be anyone she wants to be."

And perhaps the lesson to be learned - again and again is - your daughter will be exactly who God meant for her to be.  And that's enough.













9 comments:

Lalis said...

I think that in the eyes of Heavenly Father we are all challenged, and I don't necessarily think He is at peace with that. In fact, He sacrificed one of His children so that our weakness wouldn't result on our complete spiritual demise. And yeah, some of us are bit weaker than others...
My point is, I don't think you should feel guilty for not being completely "at peace"; it is simply a manifestation of the love who have for Emily and one of the thins that motivate you to do everything you can for her. It has made your heart bigger, allowed you to empathize with others,and made you more like Christ. It must be a very lonely place, but "none where with him" either. And yes, Emily will be just who she is meant to be. (http://www.lds.org/general-conference/2009/04/none-were-with-him).

Jill said...

I love you Noelle. Nothing more needs to be said. I love you. That was simply beautiful.

Mr. Thompson and Me said...

Amen! Sing it sister.

Lynne Mathis said...

Noelle, I can just hear your heart in this post. Moms who love their children with all their hearts, be it a special needs child or a "non" special needs child, worry about their future and all the "what ifs". But it all comes back to one thing....God whispers to me sometimes and this is what HE says...."I've got this". Emily is just so darn cute!!! And you are a wonderful mommy!!! ~ AngelaLynne

Bend said...

Beautiful

Bend said...

Beautiful

Beth Zimmerman said...

Amen! Continuing to pray for you! <3

Of One Heart said...

I hate the world for judging. And I love your daughter very very very much. I can do a little magic every now and then, you know? - luckily, I feel like it now.

Emily is catching up.

Watch.

From my heart to her's,
x

Julie said...

A mama only wants the best for her child. Your the most awesome mama and Em is the most beautiful little girl. She will grow at her own pace. Try not to compare.
So glad everyone is healthy and you had a good Christmas. I love your family pic.
Blessings my friend!